Posted 398 days ago
I meant to post this earlier, but if you’re in NYC next monday:
Good times, good people, good cause, and an open bar. I should be at the 7:30PM screening.
A sampling of some recent photos, bookmarks and news stories I've flagged elsewhere with this tag.
In the fall of 2004, indie filmmaker Patrick O'Brien noticed an involuntary shaking in his legs. It wasn't until May 2005 that the cause of the shaking was officially diagnosed as Amyotrophic Lateral Sclerosis (ALS, better known as Lou Gehrig's disease).
Auction for The Patrick O'Brien Foundation (Round 2!) The Patrick O'Brien Foundation is a 501(C)(3) not-for-profit organization dedicated to promoting awareness of a currently incurable illness, Amyotropic Lateral Sclerosis (known also as ALS or Lou Gehrig's disease). It is established in honor of Patrick Sean O'Brien â an artist diagnosed with ALS at the uncommonly early age of 30. Support is provided to those diagnosed with a neuro-muscular illness for life's work projects that provide a unique insight into the experience, mind, and heart of living with their disease.
Auction for The Patrick O'Brien Foundation (Round 2!) The Patrick O'Brien Foundation is a 501(C)(3) not-for-profit organization dedicated to promoting awareness of a currently incurable illness, Amyotropic Lateral Sclerosis (known also as ALS or Lou Gehrig's disease). It is established in honor of Patrick Sean O'Brien â an artist diagnosed with ALS at the uncommonly early age of 30. Support is provided to those diagnosed with a neuro-muscular illness for life's work projects that provide a unique insight into the experience, mind, and heart of living with their disease.
The former Sayreville resident, confined to a wheelchair after being diagnosed with the incurable ailment in May 2005, has turned his fate into the inspiration for what he dubbed his "life's work": a documentary film detailing his struggles with the "ugly, spirit-punishing, insid …
The former Sayreville resident, confined to a wheelchair after being diagnosed with the incurable ailment in May 2005, has turned his fate into the inspiration for what he dubbed his "life's work": a documentary film detailing his struggles with the "ugly, spirit-punishing, insid …
The two friends rode side by side, mimicking a motorcycle scene in "Easy Rider." Except Patrick O'Brien, 31, and his friend, Mal Torrance, were cruising the streets of Asbury Park in motorized wheelchairs, an American flag flying from the back of O'Brien's chair.
The two friends rode side by side, mimicking a motorcycle scene in "Easy Rider." Except Patrick O'Brien, 31, and his friend, Mal Torrance, were cruising the streets of Asbury Park in motorized wheelchairs, an American flag flying from the back of O'Brien's chair.
My name is Patrick. Sometime during the fall of 2004, I noticed an involuntary shaking in my legs. For a long time the exact cause eluded definition. On May 24th, 2005, however, I was officially diagnosed with Amyotrophic Lateral Sclerosis (also known as ALS or Lou Gehrig's disease), a terminal disease that results in the progressive degeneration of the nerves and muscles responsible for voluntary movement. It is a fatal and incurable disease. I was 30 years old.